
SYNGAP1 Stories
Syngap Research Fund, 501(c)(3)SYNGAP1-Related Disorders is a rare disease that affects Ashley Frye's son Nathan and Rainy Schlosser's daughter Hope. As of October 1, 2024, there are fewer than 1,500 people in the world diagnosed with SYNGAP1. There is no cure. In each episode of SYNGAP1 Stories, Ashley will chat with SynGap parents, volunteers, caregivers, researchers, and partners about their journey with SYNGAP1 in their lives. Their joys and successes, as well as heartaches and advice, will be discussed in this heart-warming series as we support the SynGap community.
- No. of episodes: 30
- Latest episode: 2024-11-19
- Kids & Family Parenting